This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to menkes disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on menkes disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Menkes Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Menkes Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Menkes Disease; Chapter 5. Books on Menkes Disease; Chapter 6. Physician Guidelines and Databases; Chapter 7. Dissertations on Menkes Disease; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; MENKES DISEASE GLOSSARY; INDEX. Related topics include: Copper Transport Disease, Kinky Hair Disease, Menkes kinky hair syndrome, Steely Hair Disease, Trichopoliodystrophy, X-linked Copper Deficiency.

Author: ICON Health Publications
Publisher: ICON Health Publications
Illustration: N
Language: ENG
Title: The Official Parent's Sourcebook on Menkes Disease: A Revised and Updated Directory for the Internet Age
Pages: 00000 (Encrypted PDF)
On Sale: 2002-09-09
SKU-13/ISBN: 9780597830112
Category: Health & Fitness : Nutrition
Category: Health & Fitness : Diseases - General