This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to incontinentia pigmenti, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on incontinentia pigmenti. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Incontinentia Pigmenti: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Incontinentia Pigmenti; Chapter 4. Books on Incontinentia Pigmenti; Chapter 5. Multimedia on Incontinentia Pigmenti; Chapter 6. Periodicals and News on Incontinentia Pigmenti; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; INCONTINENTIA PIGMENTI GLOSSARY; INDEX. Related topics include: Bloch-Siemens Incontinentia Pigmenti Melanoblastosis Cutis Linearis, Bloch-Siemens-Sulzberger Syndrome, Bloch-Sulzberger Syndrome, Pigmented Dermatosis, Siemens-Bloch type.

Author: ICON Health Publications
Publisher: ICON Health Publications
Illustration: N
Language: ENG
Title: The Official Parent's Sourcebook on Incontinentia Pigmenti: A Revised and Updated Directory for the Internet Age
Pages: 00000 (Encrypted PDF)
On Sale: 2002-11-18
SKU-13/ISBN: 9780597831164
Lib Category: Pediatric dermatology
Lib Category: Pigmentation disorders
Category: Medical : Genetics